RULER OF HOPE
The Mission
Our mission is to provide support and research for medically fragile children.
WHO WE ARE
A Bit of Background
Here at Ruler of Hope, we are driven to do our part in spreading the message of hope and joy to children fighting illnesses. We fundraise to provide financial support to ease the burden of medical expenses for the families of critically or chronically ill children. Our goal is to also generate revenue for research associated with the illnesses of the genetic mutation of the CSNK2B gene. This nonprofit organization is inspired by our own little fighter, Landrey.
OUR INSPIRATION
Our Ruler of Hope
Her smile captures the room. Her joy fills it. Her story inspires it.
Landrey is the first in the United States to be diagnosed with the condition of a rare gene mutation of the CSNK2B gene. She battles myoclonic epilepsy, intellectual disability, a congenital heart defect, and immunodeficiency. She spent the first 73 days of her life critically ill on life support enduring a major open heart surgery, surviving four codes. Until the age of four, Landrey was critically or acutely ill 40% of her life. She's battled through 15 hospitalizations.
For more of Landrey's journey, you can visit the blog:
WHAT WE DO
Making A Difference
PROVIDING SUPPORT
With our organization’s mission always in mind, we strive to raise financial support for families dealing with the hardships of critically or chronically ill children. We know first hand how difficult it is to care for a child who is battling illnesses in and out of the hospital. Dealing with the weight of financial burdens can make that compound. Our goal is to do our small part lifting that and proving hope and support to the families.
RESEARCH
Our goal is to promote great opportunities for those researching the illnesses associated with the rare gene mutation of the CSNK2B gene. Those illnesses include immune deficiency, epilepsy, intellectual disability and congenital heart defects.
You can't live a perfect day without doing something for someone who will never be able to repay you."
John Wooden
EARGLE RECEIVES UPLIFTING ATHLETES RARE DISEASE CHAMPION AWARD
December 6, 2018
HARRISBURG, Pa. – Austin Peay State University interim head football coach Joshua Eargle has been named the 11th recipient of the Rare Disease Champion Award, announced prior to the College Football Awards Show, Thursday.
The Rare Disease Champion Award is presented annually by Uplifting Athletes, a nonprofit organization founded in 2007 that '"inspires the rare disease community with hope through the power of sport." The award is presented to "a leader in the world of college football who has realized his or her potential to make a positive and lasting impact on the rare disease community."
Eargle won the award based on an online public vote that lasted from Nov. 12-Dec. 4.
THE COACH, HIS DAUGHTER AND THE FIGHT OF THEIR LIVES
June 9, 2019
CLARKSVILLE, Tenn. -- Landrey Eargle, her infectious smile every bit as broad as some of her father's Austin Peay offensive linemen, knows how to light up a room.
It's not that she's really trying to. It just comes naturally to the little girl who wasn't even supposed to make it out of the hospital alive after being born six weeks premature via Caesarean section and then undergoing open heart surgery at 7 weeks old.
JAYHAWK INSIDER: RULER OF HOPE
April 7, 2019
The second that Landrey Eargle enters a room there is a newfound, joyful glow that was not there mere moments ago. She is the second of three children for Kansas football's senior analyst for the offense Joshua Eargle and is the one that has changed the lives of the Eargles and countless others around the country.
U.S. BANK FOUNDATION RECOGNIZES RULER OF HOPE FOR EMPLOYEE MATCHING GIFT PROGRAM
September 16, 2019
The U.S. Bank Foundation has recognized Ruler of Hope as a charity eligible for the Employee Matching Gift Program.
U.S Bank employee’s donations of $50 to $1000 to Ruler of Hope will be matched by U.S. Bank dollar-for-dollar.
CONTACT US
You can be a part by donating with Venmo: Ruler-Hope or online by clicking Donate. Follow the latest news on social media @RulerofHopeOrg.
For more questions on how to get involved or to donate, feel free to contact us.
