Who We Are & Our Inspiration
A Bit of Background
Our Ruler of Hope
Here at Ruler of Hope, we are driven to do our part in spreading the message of hope and joy to children fighting illnesses. We fundraise to provide financial support to ease the burden of medical expenses for the families of critically or chronically ill children. Our goal is to also generate revenue for research associated with the illnesses of the genetic mutation of the CSNK2B gene. This nonprofit organization is inspired by our own little fighter, Landrey.
Her smile captures the room. Her joy fills it. Her story inspires it. Landrey is the first in the United States to be diagnosed with the condition of a rare gene mutation of the CSNK2B gene. She battles myoclonic epilepsy, intellectual disability, a congenital heart defect, and immunodeficiency. She spent the first 73 days of her life critically ill on life support enduring a major open heart surgery, surviving four codes. Until the age of four, Landrey was critically or acutely ill 40% of her life. She's battled through 15 hospitalizations. For more of Landrey's journey, you can visit the blog: